Well I happy to report that so far not having any workers/therapists coming in has been great. I wasn’t sure how A would react as he can get bored pretty quick with mommy. It has been nice so far not having to check my calander every single morning to see who is coming and at what time.
I received a call yesterday from my case manager about cancelling services and I really think that people JUST DON’T GET IT. I am doing this to protect A from getting H1N1 as best I can. I am not doing it just because I want to. I feel bad that he isn’t having the people come in that normally just come to play but I have to do what I have to do as his mom.
I look at how sick A was just this past little while and knowing that I was very afraid we were close to ending up in the ICU again over really just a “cold” I can’t even imagine what the H1N1 would do to him.
By the way, so much for me thinking I would be able to sleep the other night after getting my shot! WOW, my arm hurt so bad that I was not even able to sleep that night. It was absolutely crazy! Yesterday evening I started to feel “achy” all over as well and didn’t feel so hot however I did read that it is possible to get some flu like symptoms after receving this H1N1 vaccine.
I am off tonight with my good friend to go see the Michael Jackson tribute. Time for daddy and A to spend some good quality time together! Yep I am braving the crowds and we’ll see how I do. This H1N1 has been driving me insane because I am so nervous!
Well this weekend was very busy but VERY fun!!! On Friday night we had our stag and doe which went amazing!!! We made a TON more money than we even thought which will really help us out around here. The turnout was great and everyone had a good time. Here are some pics from Friday night…
My bridal shower was on Sunday at my mom and dads place. There was so many people and so many great gifts!!!! I don’t have any pics yet uploaded from then so I will post those in a couple of days.
I had a nice surprise visit today from my friend Vickie and her two daughters Sophia and the new baby Ava. Hopefully we can get together with all three soon…been SO long since we have seen Alina!!!
I’ll tell you, I could not get over how small Ava was and she is about 12lbs!!!! I don’t even remember A being that little. He wasn’t too impressed with mommy holding a baby. And when Ava cried there were a few pouts. He better get used to it because hopefully one day he will get to be a big brother!!!
Well I can’t believe it already, but my little man is three today!!! We had a birthday party on Sunday for him and thanks to all the kids he slept great that night!!
A hanging out with Leeann and her mom, Anne. I met Leeann at Toronto Sick Kids during our recent stay and we instantly connected. Her daughter was Ally who passed away in March. I was so happy that they came to A’s birthday, it meant a lot!
Well I need to get to bed. I just had to post his birthday post before going to bed because we are off to Sick Kids at 6:30am for an eye appointment. Nice start to your third birthday eh?!
Yesterday we were back to our regular busy schedule around here. A had his dietitian come along with his OT and PT. His PT Monique was here first so she started to do some work with him but he was NOT happy. Shelley then showed up (OT) and he was just getting way too upset for me to let them continue. He was going very off colour and I was worried that he was going to go into one of his spells. Liz showed up so we got A naked (his fav!) to get his weight. Well after about 15 minutes on the scale we could NOT get a weight on him. He was way too excited and just wouldn’t sit still long enough for it to read his weight. So by watching it and guessing he is the same as he was a month ago. Fine with me!
He then went back to trying his work with PT and OT. He did great!!!! Look at my amazing guy!
It was great too because daddy was here and was helping them while I talked to his dietitian. He never gets to see what A does and how great he is for them. He was actually doing VERY well at being on his knees and hands (with three peoples hands of course!) Monique is always so amazed with him and told us yesterday that she does not know very many kids that have such severe CP but yet are able to open their fingers and hands to grasp things. That’s my boy!
Daddy and I had some running around to do yesterday and then we headed over to see Sean and his mom Mary. She brought out Sean’s first wheelchair and it is SO cute!!
So after seeing how well A sits in it Mary said that she is going to get some new tires for it and that we can borrow it!
Sean absolutely loves seeing A! It is so funny how he worried about everything with A and what he is doing. Mary was holding A but Sean sure didn’t miss a thing! He kept telling her to be careful because of A’s back (the arching) and his implant kept beeping so he would tell her that it wasn’t working. He is a very curious guy and always has lots of questions about A. Like why he goes blue. Why he doesn’t talk. Why he shivers. So cute.
Well this was my weekend away and I had an AWESOME time!! I dropped A off in C-town on Saturday around noon. Grandma S was so excited to have him to herself for the weekend and I was happy that I was able to get away to Windsor without having to worry!
I went to Windsor to stay at Tina and Derek’s and we were in for an awesome night of fun! Derek drove us all the way to the Palace in Detroit so that we could see Keith Urban! We had 19th row floor seats and it was amazing to see him so close. He had a stage down the center as well and when he sang there we were only about six seats away from him!
I have WAY too many pictures so I just picked some of the best ones…
Gary Allen was the opening act….he was very good too!!
After getting home from the concert we didn’t do much because we were all so tired. The clocks went back in my favor as I was able to get an extra hour of uninterupted sleep! I slept from 12:30am until 11am! I don’t even remember the last time I slept nearly that long…it was great.
Tina and I met up with Aunt K for lunch before I headed back to C-town to pick A up. He was a very good boy for grandma and grandpa and she got some great pics that I will post when I get them!
Thanks again grandma for taking A for the weekend!!!!
Now of course I can’t end a post without a picture of my little man…
Well it has been a week since my last post! Friday daddy headed up North to grandma and grandpas cabin in the woods. He went up with Uncle S and Acton until Monday night when they returned home.
Aunt K came down on Saturday to spend the weekend with A and I and we went dress shopping on Saturday. After two hours of trying on dresses I found THE dress! I was so excited and can’t wait until the day that I get to wear it. I can see how emotional the day is going to be already considering that I almost started balling when I came out of the change room and saw myself in the mirror.
Saturday night the three of us headed to dinner with the “Mac Mommies”. Vickie, Shannon, Lisa and Angela were there and it was great to get together. Of course it was the one weekend when no one was available to watch A so he came as well. He wasn’t the best behaved little boy but we got through dinner anyhow. Next time I will be sure to have a sitter!
Daddy, Uncle S and Acton heading out Friday night…
Grandma and grandpa went north on Saturday morning to make some plans for the cottage that they are building and to clear some more bush…
Knocking over trees…
Acton with the ONLY fish that was caught the entire fishing trip!
Uncle S at the dam by the cabin…
Packing up to come home…
Last night A and I carved his first pumpkin. He really didn’t know what to think of it at first but as I was cutting it he was laughing hysterically.
Then mommy made him feel the inside of the pumpkin and as you can see he was NOT happy.
Right after I took that picture he started to gag and threw up. Guess he didn’t like the mush of the pumpkin!
He liked the finished product!
Today I dressed A up and took him to get his pictures done at Zehrs for Halloween. When daddy got home we took him over to have a quick visit with his friends O & A and then grandma and grandpas…
That’s the cutest little devil that I have ever seen!
Last night daddy, A and I went out to get a few things from the store and I ended up buying A the first years reclining feeding seat. I should have bought this a LONG time ago but I wasn’t too sure how well he would sit in it because it didn’t look like it had much support, but it is absolutely awesome! Thanks Billie for recommending this seat!
A is now able to sit right on the floor to play and also can sit at the table with us! If we had of gotten this seat for him six months ago there is no way that it would have worked because he always needed to be reclined, but now he sits great pretty much straight up!
This was late last night after getting in and setting it up…
This morning while mommy was getting ready…(can you tell he LOVES the Backyardigans?!)
This afternoon I got A packed up and we headed over to spend some time with Sean. My mom works with him and has for years. He is 21 years old and has cerebral palsy as well. He is an awesome guy and he had so much fun with A!
A was pretty grumpy when we got there because it was his nap time so I laid him down for a sleep. Sean kept asking if he could hold A when he woke up. As you can tell by the pictures, he did a great job!
When he was holding him he said that he wanted a baby and then said that he wished that A could live with him. LOL
When Sean’s mom came home from work she was holding A and Sean just wanted to keep making sure that she was doing it right. He kept telling her to “be careful” over and over.