Posts tagged “friends

All By Ourselves…

Well I happy to report that so far not having any workers/therapists coming in has been great. I wasn’t sure how A would react as he can get bored pretty quick with mommy. It has been nice so far not having to check my calander every single morning to see who is coming and at what time.

I received a call yesterday from my case manager about cancelling services and I really think that people JUST DON’T GET IT. I am doing this to protect A from getting H1N1 as best I can. I am not doing it just because I want to. I feel bad that he isn’t having the people come in that normally just come to play but I have to do what I have to do as his mom.

I look at how sick A was just this past little while and knowing that I was very afraid we were close to ending up in the ICU again over really just a “cold” I can’t even imagine what the H1N1 would do to him.

By the way, so much for me thinking I would be able to sleep the other night after getting my shot! WOW, my arm hurt so bad that I was not even able to sleep that night. It was absolutely crazy! Yesterday evening I started to feel “achy” all over as well and didn’t feel so hot however I did read that it is possible to get some flu like symptoms after receving this H1N1 vaccine.

I am off tonight with my good friend to go see the Michael Jackson tribute. Time for daddy and A to spend some good quality time together! Yep I am braving the crowds and we’ll see how I do. This H1N1 has been driving me insane because I am so nervous!


A Busy But Wonderful Weekend!!!!

Well this weekend was very busy but VERY fun!!! On Friday night we had our stag and doe which went amazing!!! We made a TON more money than we even thought which will really help us out around here. The turnout was great and everyone had a good time. Here are some pics from Friday night…

A got a t-shirt too!!!

We loved our t-shirts that Aunt K had done for us!

Posing with our best man and maid of honor before heading out to party!

Me and my girls!

Jeff and I with our moms…

The boys…

Me with my brother and sister…

J and I with our dads…

My dad and I at the stag and doe…

My brother and his fiance. I was so happy that she was able to make an appearance to our stag. She is very ill and it was so great to see her there. Thinking and praying for you always Andrea!

Smile!

My brother and I…

Our best man getting down with grandma S!

Having fun!!

Grandpa S dancing! LOL

Me and my mom…

Saturday…recovery day!!!! A in his pony walker watching TV. He must have held his head up for at least 15 minutes!!!

Aunt K and A…

My bridal shower was on Sunday at my mom and dads place. There was so many people and so many great gifts!!!! I don’t have any pics yet uploaded from then so I will post those in a couple of days.

I had a nice surprise visit today from my friend Vickie and her two daughters Sophia and the new baby Ava. Hopefully we can get together with all three soon…been SO long since we have seen Alina!!!

I’ll tell you, I could not get over how small Ava was and she is about 12lbs!!!! I don’t even remember A being that little. He wasn’t too impressed with mommy holding a baby. And when Ava cried there were a few pouts. He better get used to it because hopefully one day he will get to be a big brother!!!







Happy 3rd Birthday To My Little Man!!!

Well I can’t believe it already, but my little man is three today!!! We had a birthday party on Sunday for him and thanks to all the kids he slept great that night!!

Party pictures!!

Napping before the party…

A hanging out with Leeann and her mom, Anne. I met Leeann at Toronto Sick Kids during our recent stay and we instantly connected. Her daughter was Ally who passed away in March. I was so happy that they came to A’s birthday, it meant a lot!

Elizabeth…

Leeann and I…

Two special grandmas…

Getting his balloons…

Olivia…

Daddy with his two gorgeous girls…

Bubbles, balloons…what could be better?

Sleepy Avery…

Cody…

Avery…

A’s birthday cake!

The girls helped him blow out his candles…

Elizabeth and mommy…

Olivia and Avery watching Mady sleep…

Elizabeth loved getting all the animals to sing at the same time…

Avery and A…

Well I need to get to bed. I just had to post his birthday post before going to bed because we are off to Sick Kids at 6:30am for an eye appointment. Nice start to your third birthday eh?!


Another Visit With Sean!

Yesterday we were back to our regular busy schedule around here. A had his dietitian come along with his OT and PT. His PT Monique was here first so she started to do some work with him but he was NOT happy. Shelley then showed up (OT) and he was just getting way too upset for me to let them continue. He was going very off colour and I was worried that he was going to go into one of his spells. Liz showed up so we got A naked (his fav!) to get his weight. Well after about 15 minutes on the scale we could NOT get a weight on him. He was way too excited and just wouldn’t sit still long enough for it to read his weight. So by watching it and guessing he is the same as he was a month ago. Fine with me!


He then went back to trying his work with PT and OT. He did great!!!! Look at my amazing guy!

It was great too because daddy was here and was helping them while I talked to his dietitian. He never gets to see what A does and how great he is for them. He was actually doing VERY well at being on his knees and hands (with three peoples hands of course!) Monique is always so amazed with him and told us yesterday that she does not know very many kids that have such severe CP but yet are able to open their fingers and hands to grasp things. That’s my boy!

Daddy and I had some running around to do yesterday and then we headed over to see Sean and his mom Mary. She brought out Sean’s first wheelchair and it is SO cute!!



So after seeing how well A sits in it Mary said that she is going to get some new tires for it and that we can borrow it!



Sean absolutely loves seeing A! It is so funny how he worried about everything with A and what he is doing. Mary was holding A but Sean sure didn’t miss a thing! He kept telling her to be careful because of A’s back (the arching) and his implant kept beeping so he would tell her that it wasn’t working. He is a very curious guy and always has lots of questions about A. Like why he goes blue. Why he doesn’t talk. Why he shivers. So cute.


Keith Urban In Detroit!

Well this was my weekend away and I had an AWESOME time!! I dropped A off in C-town on Saturday around noon. Grandma S was so excited to have him to herself for the weekend and I was happy that I was able to get away to Windsor without having to worry!

I went to Windsor to stay at Tina and Derek’s and we were in for an awesome night of fun! Derek drove us all the way to the Palace in Detroit so that we could see Keith Urban! We had 19th row floor seats and it was amazing to see him so close. He had a stage down the center as well and when he sang there we were only about six seats away from him!

I have WAY too many pictures so I just picked some of the best ones…

Gary Allen was the opening act….he was very good too!!













After getting home from the concert we didn’t do much because we were all so tired. The clocks went back in my favor as I was able to get an extra hour of uninterupted sleep! I slept from 12:30am until 11am! I don’t even remember the last time I slept nearly that long…it was great.

Tina and I met up with Aunt K for lunch before I headed back to C-town to pick A up. He was a very good boy for grandma and grandpa and she got some great pics that I will post when I get them!

Thanks again grandma for taking A for the weekend!!!!

Now of course I can’t end a post without a picture of my little man…


A Busy, Busy Week!!!

Well it has been a week since my last post! Friday daddy headed up North to grandma and grandpas cabin in the woods. He went up with Uncle S and Acton until Monday night when they returned home.

Aunt K came down on Saturday to spend the weekend with A and I and we went dress shopping on Saturday. After two hours of trying on dresses I found THE dress! I was so excited and can’t wait until the day that I get to wear it. I can see how emotional the day is going to be already considering that I almost started balling when I came out of the change room and saw myself in the mirror.

Saturday night the three of us headed to dinner with the “Mac Mommies”. Vickie, Shannon, Lisa and Angela were there and it was great to get together. Of course it was the one weekend when no one was available to watch A so he came as well. He wasn’t the best behaved little boy but we got through dinner anyhow. Next time I will be sure to have a sitter!

Daddy, Uncle S and Acton heading out Friday night…


Grandma and grandpa went north on Saturday morning to make some plans for the cottage that they are building and to clear some more bush…

Knocking over trees…


Acton with the ONLY fish that was caught the entire fishing trip!




Uncle S at the dam by the cabin…

Daddy…


Packing up to come home…

Last night A and I carved his first pumpkin. He really didn’t know what to think of it at first but as I was cutting it he was laughing hysterically.


Then mommy made him feel the inside of the pumpkin and as you can see he was NOT happy.


Right after I took that picture he started to gag and threw up. Guess he didn’t like the mush of the pumpkin!

He liked the finished product!

Today I dressed A up and took him to get his pictures done at Zehrs for Halloween. When daddy got home we took him over to have a quick visit with his friends O & A and then grandma and grandpas…





That’s the cutest little devil that I have ever seen!


Our Visit With Sean

Last night daddy, A and I went out to get a few things from the store and I ended up buying A the first years reclining feeding seat. I should have bought this a LONG time ago but I wasn’t too sure how well he would sit in it because it didn’t look like it had much support, but it is absolutely awesome! Thanks Billie for recommending this seat!

A is now able to sit right on the floor to play and also can sit at the table with us! If we had of gotten this seat for him six months ago there is no way that it would have worked because he always needed to be reclined, but now he sits great pretty much straight up!

This was late last night after getting in and setting it up…

This morning while mommy was getting ready…(can you tell he LOVES the Backyardigans?!)



This afternoon I got A packed up and we headed over to spend some time with Sean. My mom works with him and has for years. He is 21 years old and has cerebral palsy as well. He is an awesome guy and he had so much fun with A!

A was pretty grumpy when we got there because it was his nap time so I laid him down for a sleep. Sean kept asking if he could hold A when he woke up. As you can tell by the pictures, he did a great job!


When he was holding him he said that he wanted a baby and then said that he wished that A could live with him. LOL


When Sean’s mom came home from work she was holding A and Sean just wanted to keep making sure that she was doing it right. He kept telling her to “be careful” over and over.


A Very Busy Week So Far!

Well it has been a very busy week around here, but to start here are the pictures from A’s playdate with Olivia & Avery.















Monday A had physio which he did very well at. Monique is always amazed with his attitude and ability to do things. This summer A has made great progress with a lot of what he is doing and is able to do. Things aren’t always noticeable to me, but when I look back on videos and pictures the change in him is just incredible! I am so proud of his determination to do things and his incredible attitude with WANTING to do things. This is only going to help in in life progress more than many thought that he would.

He also had auditory verbal therapy on Monday with Deb, and she hasn’t seen him in at least three weeks. She was amazed at his progress with his hearing and was VERY happy to say the least. I think that he has gone further with that already than thought before the implant. Last night I was holding him saying “where is daddy?” and he looked over at J twice! I don’t know if it was a coincidence or what but it was WAY too exciting either way.

Tuesday Shelly came over to play with A so that daddy and I could go out on a date. We went and saw Halloween at the movies and it was great! The last movie that we saw together was in August of 2001! And I can probably count on one hand the amount of times that we have had “us” time since A was born.

Wednesday Ashton had Bonnie, his EI here to play with him. She had a really cool toy that spun and had a blue light in it so the string that was going around would light up. I thought for sure that he would LOVE it but he didn’t like it at all. It is a switch toy and right away he was pouting. I told her to try again because I thought with it being new that might just be his problem with it. NOPE he wanted nothing to do with it.

His nurse was supposed to come last night as well but she was sick. I don’t think I have told you all that Ashton has a new nurse. She has been here twice and will be doing once a week. She is very nice and good with him.

Today Ashton had Sandi here from CNIB to work with his vision. Do the appointments ever end?! haha probably not. I have a hard time with her as well because I have never thought that Ashton had issues with his vision. We were all pretty surprised when we found out that he needed glasses and was very close to be considered legally blind. I have a referral in to see Dr.Wiggins in Waterloo and I hope that he will be able to help me better understand what Ashton is seeing and so forth.

I have been waiting to hear back from Ashton’s doctors in London about his MRI. They had left a message on Friday that sounded pretty urgent and said they would call me Monday. Never heard a thing. I have left two messages and still nothing. I have also not heard from the respirologist from last week that told me that she would call on Tuesday. SO with tomorrow being Friday I am expecting two important phone calls!

I am happy to report that FINALLY I have an appointment with a neurologist at Toronto Sick Kids. I have been trying to get this referral since October of 2006! My countless phone calls, my attitude and persistance has finally paid off! It is not until December but I am excited to speak to someone new that doesn’t know Ashton.

I have also been really busy with wedding plans! Wow I cannot get over how much work it is and how many decisions need to be made. I wish I had more people around that would help me with what I am doing!


Playdate, Bridal Show & 2 Month Hearing Age!

Well the weekend is at the end and I am exhausted! On Friday I took A to Olivia & Avery’s for a long overdue playdate. The girls are doing amazing and I was very impressed with how well they were speaking and behaving! I have some pictures but for some reason blogger is not working properly to post pics so they will have to wait until it is up and running again!

Friday night I also went and met with a husband and wife photographer team. I really liked their work and the fact that there would be two people doing photos. I cannot believe how many photographers there are around and I don’t know how anyone can make a final decision on who they would like there!

Today I went to a bridal show here in Guelph with my mom and cousin Nicole. I was pretty impressed with what I saw and I think that it helped me make a few more decisions for the big day. I am pretty sure I have decided on a photographer and I know one place that I WON’T be getting a cake from. haha it wasn’t very good. Being there really made it FEEL more real and I can’t wait until the day is here!

It was two months ago today that A had his implant activated. Wow I cannot believe how fast time goes. He has done amazing with the implant so far and I am so happy that I made the decision to have the surgery and give him such a precious gift. Things I have noticed already with the implant are:

1. Turns to toys when they are activated.
2. Recognition of my voice and his daddy’s.
3. Acting scared of certain toys/noises.
4. Anticipation of the implant being turned on in the morning.
5. Knows his train, knocking on the door, popping sound with your mouth, clicking of the tongue, the dog barking and a couple other SPECIFIC toys.
6. Much more vocal at times.
7. Taking turns making sounds.

What I am currently working on with him:

1. Name calling to learn “A”
2. Having two animals in front of him, making the sound for one and have him look at the correct one.
3. Excitement to new sounds.
4. Of course mamamama…hasn’t worked YET!

So in the two months you can see how well he has done. That’s my boy. My amazing little boy.


Playdate, Respirology & 23.9lbs!

Yesterday I took A over to Alina and Sophia’s for a long overdue playdate. The girls birthday was on August 13th and I still had not given them their presents! It was a really nice day so we spent it outside. A was not the happiest boy though so things didn’t go as nicely as I had wished. But hey, that’s what happens sometimes with kids.

Sophia and A on the swings…he wasn’t sure what to think at first as you can tell but he then changed his tune…




There are the smiles!



Sophia giving kisses…




Alina woke up for some playtime however A wanted to sleep…

Haha way too cute…


Sophia opening her present…

Alina and her thumb!

Alina opening her present…



After leaving there we headed over to Mac for his appointment with a respirologist. I should add his FIRST appointment with one which is VERY odd to me considering that he was on oxygen until 18months of age.

Anyhow, I was not going to go because I am seeing a pulmonologist next month at Sick Kids but I did go. I am very happy that I did as well. She was a very good doctor and totally listened to everything that I had to say. She didn’t rush me and was very interested in A. I was basically sent to see her because of the whole fundo idea. However I am happy to say that she agrees with me that the fundo is not the route to go! WOO HOO someone on my side!

The first five minutes she spent just looking at him and watching him. Then she turned to me and said “you take very good care of him.” I didn’t really know what to say as I have not heard that from a doctor that I don’t know at all. I said thanks and she said “really, I can tell just by sitting here that you do. And even his shoes match his shirt.” LOL Yep that is me! He is a stylin boy, I can give myself that much.

She thinks that A’s reflux is basically all upper airway which means that a fundo would not help him at all. Hmmmm what I have been saying for months? Basically it is like he is pooling all of his saliva in his upper airway and then he will gag and it comes up. I have been saying for about a year now that I don’t think what he is vomiting is coming from his stomach. It is too thick and just doesn’t seem like it would be. The odd time he does vomit formula which is a big deal considering he has a gj tube but it is very rare for this to happen.

She also asked me who decided that not feeding him orally was a good idea. LOL Well long story short that was taken away from him when he was readmitted after only four days home from the NICU. I had NO say at all and this is when the nightmare began.

Another question she had was why he hasn’t had another scope of his airway done. The last time was February of 2006 while in the ICU. Well I had asked for one but I was told that it was unessary testing. What else can I do? I think she got the hint that I was REALLY frustrated with doctors and the care that A has received. I always feel like I am going in circles and it is so hard to keep fighting for what I believe in when I get no where. I had also told her that he had laser surgery on his airway in December of 05 and when he was readmitted the same surgeon/ENT told me that his laryngeal malaysia was back. Back??!!??! She was confused! Now I am even more confused than I ever was too.

Next question. Why hasn’t he had another echo? Hmmm well we had pre-op for an echo in March of this year. STILL haven’t heard when it is. I have called and I just get told that they need OR time and until something is cancelled he has to wait.

The echo came up when we were discussing his ALTEs-apparent life threatening events. Why she wanted to know has no one looked further into them? Hmmm I have been wondering that since they started happening. Being told by a doctor in ICU that what A does scares him and that he has no idea what to say doesn’t make me feel much better. Being told that every time these spells happen there is a chance that he will not come out of them isn’t helpful either. Being told to make sure that I know CPR doesn’t help either. Besides if the ICU can’t bag him and get air into him during a code blue then how the heck can I do it here at home?!?!?

I feel like I might finally be getting somewhere. I think that maybe, just maybe I have found someone that WANTS to help A.

A waiting for the doctor at McMaster…go figure, now he’s happy!

Laughing away at something…

A with Bonnie from the NICU. We had not seen her in almost a year and she couldn’t get over how big he was! She was an awesome nurse and very caring and true.


A last night before he went to bed sitting with daddy. A loves daddy time at night and is always so much calmer with him than me. I guess it is a nice break for me though 🙂




A Day At The CNE In Toronto!

It has been a VERY busy few days around this place! Tina came down on Thursday night from Windsor to come with me to look at three different places for the wedding. We looked at two on Friday and one on Saturday and I think I have my mind made up on which place I would like it. It was so exciting to go into these places that were set up for weddings and knowing that one day it will be my wedding! It was so nice to have another opinion so thanks Tina for coming down!!!! It is very greatly appreciated! And thanks Shelly for coming to watch A for the day on Friday so that we were able to get things done!

The one place that we went to was the Pines in Cambridge. It was absolutely gorgeous, but the lady that I was supposed to meet with didn’t show up! I was very disappointed because she wasn’t very nice on the phone and therefore I had said that she would really have to step it up at the viewing. Well no show means no go for me! It is too bad too because it was soooo nice. I would have been pretty upset had that been my wedding set up and there are people walking around inside unattended. After about fifteen minutes of wandering around with no one to be seen we found the chef in the kitchen. He helped us a bit but it didn’t make up for the owner not showing.

Yesterday was definitely a lazy Sunday. Everyone needs those once and a while though. Today made up for that. We decided to take A to the CNE in Toronto. I was really looking forward to the air show however we were stuck in traffic for a LONG time to get to the parking lot. We left at 12:30pm and didn’t get out of the car at the Ex until 2:30pm. Our friends Shawn and Karen came with us along with their kids Payton and Riley. We got to see the planes but not from very close up. It was so loud and really something to see! I was surprised that A was okay with the noise but he did look a bit confused. The rides were pretty noisy and the first one we stopped by A was pretty scared and pouting.

It ended up being a VERY hot day and not really expected. It was almost too hot to be walking around for that long but A did well. However he did have tons of vomiting which I think was due to the heat and the sun. But as you can tell by the pictures he was still pretty happy.

This picture was from the other night but it was very cute how he was copying sticking out his tongue…




A on the merry go round! He wasn’t too sure what to think at first when it started moving but he did well.



Payton and Riley driving…



The snowbirds…







I wish I knew what he was thinking sometimes…

J took Payton on the graviton. She had never been on rides before but didn’t have any problems getting onto them!



Our 2nd McPera Picnic!

Yesterday was the annual picnic at McMaster hospital for all of the graduates of the neonatal intensive care unit. We had a great time and got to see all of our preemie friends again! I also was able to meet to different moms that I have met over the Internet who also had a child in the NICU at McMaster. It was great!

Grandma and grandpa came with A and I as daddy was up north fishing with Uncle S. We both miss him and can’t wait to see him! Anyhow here are my pictures from today!

A waiting to get his tattoo with grandma…

A and his tattoo artist 🙂 Notice the leg….

A with the amazing Dr. Shah!!! Actually, it is kind of ironic that two years ago to the day, A was only 13 days old and VERY sick. Dr. Shah had called both J and I to come into the hospital. I will never forget that day. I was just getting ready at the Ronald McDonald House and I got the page. I panicked especially when I was then handed off to the doctor. He told me to come ASAP. I did that. Meanwhile he had called J (who was working in Guelph). My parents had come with him. I think they made it to Hamilton in about 30 minutes…maybe less!

Anyhow, when I walked into the pod where A was I saw a lot of people around his isolette. I started to wash my hands and could feel my heart in my feet. I felt so sick. The tears started before I even reached the corner A was in. Dr. Shah just looked at me and shook his head. More tears. Danielle was on this day too which helped me a lot.

We had a meeting with Dr. Shah that afternoon. I remember how long that walk felt down to the room we were meeting. There was a sign on the door that said “The C’s”, it was awful. They had given A a drug to paralyze him because of some strange jerking and stiffening movements which he said they had never seen before. He told us that he wished that he had answers but he didn’t. Time would only tell what would happen. He also took some spinal fluid to see if anything would show up there.

J and I were also told that we needed to make some choices. We wanted everything done for A. He told us then of the chances of him being blind, deaf, handicapped but none of that mattered to us. We just wanted our little boy saved and alive.

Then, to a year ago today….another meeting with Dr. Shah. A had also stopped peeing and he was concerned about kidney failure. Nothing showed up in the spinal fluid or the blood cultures. They still had no idea what was going on.

Two of the worst days of our lives for sure. But without this wonderful doctor A probably would not be here today! Dr. Shah will always have a special place in our hearts…


A with Hamilton Tigers mascot…he sure didn’t know what to think!!!


A fishing just like daddy and Uncle S!!!


Sweet Cale…

Walking with daddy…

Little Alina and her thumb…

A, grandma and Alina…

A starring at Alina…

A, Sophia and Alina…

Avery and Olivia…

Alina, Steve, Brian, Avery, Olivia and Shannon…

A and Maddox…I met his mom through the Internet and we got to chat a bit in person!!! He is a cutie!

My little man…tired but still giving me some smiles!

Grandpa blowing some bubbles for A…


Cale enjoying the bubbles too…

A with Steve. He was also another great person involved in the beginning, including the two days I just spoke of. So caring and compassionate with his work. I remember him telling me when A was leaving the NICU that he wished I could share some of my devotion and attitude with some of the other parents. It is always comments like this that make you feel good.


A and Cale…

Avery and her grandma doing some colouring…

My little man…smiling away for the camera!


A checking out Avery (with her grandma and mommy)….

More smiles!


A and Cale laughing at Cales daddy playing peek a boo….

My favorite picture!!!

A back at Sophia and Alina’s house…a little more relaxed since losing his shorts! (We all headed over for a nice visit)

Alina enjoying being outside!

Avery by the pool…

Alina and A sitting side by side…A was just babbling away here, it was really sweet…


Holding hands…


Olivia and Sophia and Alinas grandpa…

Avery and daddy…

Alina and mommy…I missed the big smiles…

Vickie and A…

Thanks Steve and Vickie for having us over, we really had a great time!!! After leaving there A and I headed over to the hotel with Tina, Derek and Cale.

Looks like these two boys are just like their daddies haha

A in his floating wet suit haha it was way too funny trying to get him into this thing!! It worked AWESOME in the pool though for him!! I have had a really hard time finding him floating devices that work at all. With his low tone in the neck and trunk it makes it hard to hold him. This helped him hold his head up and was no work at all for me!

Cale in his jumper…

A watching tv and STILL smiling away (no nap today either, pretty impressive!)

Cale in bed…I was trying to take a picture and he covered his face with his blanket…

Then the washcloth…

YAY, I finally got the picture!

So it was a LONG day for everyone! A and I didn’t get home until 11pm. And I am happy to report that he had a pretty good night!!!!


Olivia & Avery’s Birthday Pictures!

Well I haven’t done a post in a couple of days as I have been way too tired to do much of anything. I still have not even gotten close to catching up on the sleep that I didn’t get while A was in the hospital. So first here are the birthday pictures for Olivia and Avery. We had a great time and it is always fun to watch A when other kids are around!


Sweet Olivia…

 Grandpa & Avery…


 Haha you gotta love that smile!

 What a cutie!







 Waiting for the birthday cake…

 Avery trying to blow out her candle…it was way too cute!

 This just makes me smile 🙂

 Elizabeth, Avery, A and Olivia


Elizabeth and A wanted to watch TV…can’t you tell?

 Daddy with his girls…

Thanks Shannon for having us we had a great time!!! And WOW, the food was just AMAZING!!! I definitely need to get a few recipes from you!

So yesterday was Father’s Day. A giving daddy his card…


Hanging out at grandma and grandpas with his balloon…


The last couple of days A has been right back to himself. Smiley…happy, the same kid he was before surgery. Nights, well that is a different story! I don’t know what is going on but he has been awful at night and it is something that I am really not used to. He is starting to act really clingy and scared lately. I guess it is kind of a good thing because he never showed really any emotions before, but it is strange at the same time.

I just finished doing a sat trend today that I started on Friday. I will hopefully get the results of that soon from the doctor that did it for me. I do have to say though that it is very hard to see how much he desats considering the fact that he is two years old, and this is something that they told me would end by 34 weeks gestation! Well they were wrong because we are WAY WAY past that!


Protected: Happy 2nd Birthday A!

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TONS Of Pictures! I Just Couldn’t Help But Put Most Of Them Up On Here!

Well I am sad to announce that baby Jaxon passed away this morning at 2:43am. His parents were able to be there with him as he passed. This family has already suffered so much and now have more heartache to deal with. They have lost all three of their babies. My heart truly goes out to them at this time.

On a brighter side of life, my little man. He had his last auditory verbal therapy session yesterday for a while. Deb said that she will be waiting to come back until after we find out about his implant and when the tentative surgery will be! She always has tons of cool toys for him and he loves working with her!



Last night I put A to bed and he just did not want to go to sleep. I couldn’t help but laugh at him because everytime that we would go in to check him he was smiling like crazy at us! These pictures were at 1am!



Today A and I headed to Hamilton to have a playdate with Sophia and Alina. It has been a while since we were last there to visit but we were able to make it work for today! Our days with Alina and A are just really busy so it was great to finally get over there. It is so nice to see the way that they interact together.

Sophia bending down to kiss A…


Aren’t they the sweetest?!




Awwwww…

Sophia putting stickers on A’s head…



A getting his very first kiss on the lips! LOL (Don’t know whats up with my face in this picture! LOL)

One of the rare findings…a picture of A and mommy! (Thanks Vickie!) And yes, A is standing here with VERY minimal support!

A was getting pretty good at pulling out the plug from Alina’s trach…





Leaning in for another kiss!

Looking at the balloon…

Caught them both smiling!



Alina & Mommy…look at that smile!

Such a sweetheart…



Watching TV…are you comfy A? LOL

This was way too funny…Alina was sucking her hand/thumb and her elbow was by A’s mouth…so he decided that he was going to suck on her arm!

He is really thinking here!

Back to sucking on her arm…

After leaving from our playdate I decided to stop in at Mac. I was really hoping to see Marg since it has been almost a year but of course she was not on. We did however get to see Dr.Shah and talked for a bit. (He was A’s very first doctor in the NICU & a wonderful man!)

As we were leaving from there and heading to the elevators we got REALLY lucky! Almost every single person (besides nurses and doctors) that A had was coming from the other way!! It was so nice to see them. There are a few that we have not seen since A was still in the NICU!

A when I got home from Hamilton…passed right out!


A, Olivia & Avery All Meet!

Yesterday we finally got A his bicycle trailer!!! We are VERY happy with it and he did good when we took him for a ride last night. We went all the way to grandma and grandpas in it which is about 45 minutes by bike. We stopped at Zehrs to pick up some sausages to barbecue when we got there. Grandma ended up driving A and I back as it was getting dark and pretty close to 10pm when Joyce came.


When Joyce came in she told me that there was something going on at the intersection right outside our place so I went down to be nosey. Ends up that it was a motorcycle that had hit the cement barrier and threw the driver VERY far. He was dead at the scene. J and I rode down to timmys for a coffee and on our way home the body was still there. We got home at about 1:30am.

Today was a busy day for me considering how exhausted I am. I was up when Joyce left at 8am and A happened to get up just after that so I never got to go back to bed. Grandma was here for 10am and I got ready to head out to Cambridge with my friend Tracy. We went shopping and I bought A these ADORABLE little sandals!!

When I got home around 2pm A had just woke up from a great nap. He had physio this morning as well so he was pretty pooped out. I got him ready to head over to meet Olivia and Avery. They were born five days after A at 26.6 weeks. Their mom (Shannon) and I had a great talk while A watched the girls play. They are absolute dolls!!! Take a look for yourself…









A and I didn’t end up getting home until shortly after 6pm. We had a great time and I look forward to all of us building a relationship! It is so nice to have other moms that understand the whole preemie thing. Thanks for having us Shannon!

A hanging out with daddy tonight…



A & Cole Finally Meet!

This morning I had to get A up and out of bed so that we could drive daddy to work. It was actually kind of funny because it is the first time that I know he was not thrilled about being taken out of bed before he was ready. Upon coming home I laid him on the couch and within minutes he crashed for almost two hours!

When he got up I got us all packed and ready to head to Kitchener to meet Cole! Cole was in the NICU when A was and his parents also stayed at the Ronald McDonald House. Actually kind of a small world because Cole’s dad and I went to high school together. Anyhow Cole was also born at 24 weeks and weighed 675 grams. Here is a profile that his mom Lisa had put on her site about him. Cole Evan

It felt kind of strange seeing Cole and meeting him because I feel like I already know him so well! But that is from following his blog daily and seeing what he is doing. It is so nice that I have met a few moms in the NICU and still keep in touch. They are definitely the ones that I can turn to when I have issues because I know that they understand.

A couple of pictures from last night of A…



Cole…what a sweetheart!

Cole is such a busy boy that I had a hard time getting any pictures of the two of them together. Here are the only two that I caught!


Cole climbing on the chair…is he cute or what?! And that smile!!



A keeping an eye on Cole…

So we had a great visit and I am so happy that we got them together! It took a long time but it is so hard during the months where germs are at their worst.

Lisa has a great site that I read daily. I have a link on the side of my blog for it…she has all the latest for anything and everything you can think of!
Growing Your Baby

After leaving our playdate we went to Fairview Mall for a bit. A loves his new stroller so I figured we could go there for a bit before heading home. We picked up daddy when we got back into Guelph and came home. We got the dogs ready and all of us headed out for a walk because it was so nice out! I am so happy that the days are coming where I can get out more with A. It is so hard being cooped up in the house all of the time!

Daddy and A watching the Leaf game…this has become one of my FAVORITE pics of the two of them!


Lisa You Brought Tears To My Eyes!

Well first I have to say a big thank you to Lisa! I met her at the NICU when her son Cole was there as well. He was also born at 24weeks and weighed 675grams. Anyhow, she has a blog with TONS of information and I check it out every single day. So today I get on there and I am reading her recent posts and then I get to a picture of Alina and A! Well I started crying! Check it out here:

A & Alina

Today was a non stop day for me. Daddy worked all day and didn’t get home until after 9pm. Grandma came to pick A and I up to take him to have his face measured for his glasses. I did get one picture this time of him in them, but you still all have to wait!

Then we went and got a few groceries because Uncle S and Andrea were coming for dinner. So I made homemade spaghetti sauce this afternoon, did four loads of laundry, bleached the bathroom, vacuumed and dusted. Uncle S and Andrea came over just after 6pm and brought bruschetta bread, key lime pie and cinnamon buns!

Well it is just after midnight and I am heading to bed! I really hope A sleeps well tonight because I am exhausted!

Grandma & A just before his fitting…

A & Andrea with his new light up tambourine…