Posts tagged “big boy bed

Some Amazing News!!!!

Well first things first. On Thursday I went out for a bit while grandma was here with A. When I came home she was very excited to tell me that A said TRUCK twice!!! She said she was SO excited and ready to cry hoping I would come in the door that minute. She was playing with a truck and just kept saying it over and over and then boom he said it!

Well last night I was sitting on the couch holding him and he was very focused on me. I kept saying CAR and he was really really watching my mouth. Then he said it!!! Probably about six times in a span of five minutes! J was sitting next to me and it was so amazing to hear him finally say something that you KNOW is purposeful!!!!

And my last bit of excited news, is that A slept in his big boy bed last night for the first time. He was VERY excited when we laid him down at 11:30pm and I didn’t think he would go to sleep but he did. I thought that I was going to cry as this is a HUGE step!!

Look at the head control!!!

Bonnie, his EI was here to help out by blowing bubbles during physio…

Using a joystick switch control for the first time and doing great! Of course it has to be a bubble blower! hahaha

A is his big boy bed for the first night! He looks SO small now!

Think he likes it?!? hahaha

Night night buddy!

And this morning I heard him moving around so I went in there with my camera and he was starring at the wall…

And then when he turned and saw me!

Way to go little man, mommy is SOOOOO proud of EVERYTHING that you do! You definitely are my amazing little man!

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A Long Overdue Update!!!

Sorry that it has been so long but things have been very busy around here (what else is new?!) and I have gone over my limit of pictures on my blog so I had to erase some older ones and will be buying some new space for more!

So whats new? Well A is still being A. I am on my way working back into the blended diet as I do not think that any of the foods were causing his issues. He still continues to have episodes of going off colour in the day and being fussy at night. Not sure what is going on at all. I have been chatting with the team at sick kids and I finally got an answer from them YESTERDAY of what the teams thoughts were on the video I had sent. Well she said that they feel it is the same thing he was doing inpatient only with teeth grinding and that mixed with breath holding makes things like this happen.

Well I emailed them back saying that what he is doing is NOTHING like what he was doing before at all. I also told her that I did not want to hear the saying “breath holding EVER again”. What A is doing is NOT breath holding and never has been. The doctors know my feelings on this. She also said they wanted to do botox again in his saliva glands. I am not for that at all either because it did not do anything the first go around. So anyways that is that….

A having fun at grandma and grandpas…

So now for the first of some exciting news! A has been doing WONDERFUL with his head control! And look at the big boy sitting so nicely holding up his head with his PT!

I cannot wait to get this kid a new bed!!! I am getting so frustrated with how he moves so much at night and gets his legs and arms caught in the crib. Half of the reason I think he wakes up at night is because of this so in a month this little man is going to have a big boy bed!!

And now for some tear jerking exciting news! The other day his EI worker was here to play/work with him. At the end of every session she colours a picture with him. She gets the paper ready and then will hold up two markers and make him choose what one he wants. Then she will put it in his hand and hold his wrist while he moves it around. Normally he isn’t even paying attention to the colouring at all and is trying to pull the marker back to put it in his mouth. Well this time he coloured ALL BY HIMSELF! She wasn’t even holding his hand AT ALL! I grabbed my camera and snapped some pictures and then I grabbed the video camera and taped him. He is SO amazing!


With the finished piece of amazing art work!!!!