Please Just Pray

Where to begin? My little man is sick. Yesterday was a horrible day. He had a fever again, was requiring oxygen and cried/whined the WHOLE day. My heart was feeling broken in two. I can’t stand to see him suffer. To be so upset when he is normally the happiest boy that I know.

After getting home last night, we got a phone call at midnight. It was the ICU doctor calling to tell us that A had an episode that required some bagging and chest compressions. I got off the phone with him and just cried. I just can’t take this.

4am the phone was ringing again. It was the ICU doctor telling me that it happened again, that they were going to keep him off of the bipap and keep a close eye.

Our team meeting today was with all of the doctors involved. I found out then, that A actually flatlined during his episode at 4am for about 20-30 seconds.

It looks like we will be going the route of the tracheostomy.

I am scared right now. Please pray for A to have the strength to fight this. The will to go on. Please pray for the surgeons that will perform this. Please pray for myself and for Jeff to be strong and know we are doing what is right for our boy. But most of all, pray that this helps A.


7 responses

  1. Laura

    Oh S I am so sorry! I am praying that A will get through this and the trach will help him, he is such a cute kiddo I love his smile and can’t wait to see it again on this blog!!!

    December 8, 2009 at 6:31 pm

  2. Angela

    Tons of prayers coming your way.

    December 8, 2009 at 7:24 pm

  3. We’re praying hard for you all here in Ohio. Prayers for your family and his medical team. ((((HUGS))))

    December 8, 2009 at 7:33 pm

  4. mandi

    S, my heart goes out to you girl, I can’t imagine what is going thru your head right now but know that i’m here for you and always will be. A is such a fighter and has gotten this far because of you and J. You have to do what you think is right and what will help A the most, we need to bring back that smile to his face that we all love to see.
    I’m praying for all of you and the wonderful doctor’s that are going to help A come home
    love you girl

    December 8, 2009 at 11:58 pm

  5. Michele

    S, J & A,

    We love you all so much and are so scared for all that you are going through.. Know that we are here, praying and hoping that everything works itself out and that A is ok.

    Words cannot express how much we love you all.

    December 9, 2009 at 10:06 am

  6. I cannot imagine what you guys are going through, but I pray that you get some answers as to what is going on. Mr A and your family will continue to be in my thoughts and prayers.


    December 9, 2009 at 10:53 pm

  7. Oh my, S I have been away for awhile but still follow your blog closely. I will pray for sure and am sending positive thoughts to all of you. You are amazing and have done all the right things for A all along, I feel this is right also. I know how much you have delt with his blue spells. Thank you for sharing with us and be strong. Tracy

    December 9, 2009 at 11:56 pm

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