Been A While Yet Again!

First, a very happy 19th birthday to Aunt Shorty!!!

So I seem to be really slacking on updating this blog, but this summer is just crazy busy so forgive me!

So I had my bachelorette on the 18th and it was fun and all of us had a great time. The only crappy part was, the Friday night that I got there I started with a sore throat! By Saturday night I had a pretty bad cold and my throat hurt just to breathe. I didn’t get ANY sleep and needless to say the drive home on Sunday was long and I just wanted to cry I felt so sick. When I got home I ended up in bed and tried to sleep. A had a good weekend with daddy and grandma and was a good boy.

Monday the 21st I had my four wisdom teeth pulled under a general anesthetic….figured I might as well feel like crap for everything all at once! If I didn’t get them out that day then I was looking at waiting until September and there was NO WAY that I could wait that long. They have been so painful and keeping me up at night. Recovery went very well and I only ended up taking pain meds on the Wednesday. Much easier than I thought that it was going to be!

Tuesday evening (the 22nd) I noticed that A seemed to sound congested. While we were out I picked up some benadryl to give him to hopefully help him sleep. By Wednesday he was VERY sick. He is now on a monitor at night again as I need to know what he is doing. Overall he has been doing pretty good but there are definitely moments where he drops very low and does need some suctioning and stimulation. I just hope that I am able to keep caring for him here and not have him end up in hospital. This is now day 8 for him and he doesn’t seem to be getting any better. I however still have a bit of congestion and cough so I am not too worried at this point.

So since my last update not too much has been going on as we have been kinda trying to recover and get better. It totally sucks being sick! I tried SO hard to do everything right but of course he still ended up getting it from me.

On another note, today was the day that A got his wheelchair. We are trialing it for a month and see how it goes. If I am happy with this one then they will order the same and if not then we will trial another one. I was excited to get there and see this wheelchair and have something for him to finally sit properly in and get rid of this darn stroller that I can’t stand! At the same time it is hard because although we have always known that he would end up in a chair it is reality. I have to tell you though, he sits AMAZING in this chair!!!! We will definitely have to use it a ton more to see how it works and we base our decision on the chair very well.

When we got out to the car and loaded up the wheelchair and his stroller I was okay. It was when I looked in my mirror and saw the wheelchair in the back that I started to cry. There definitely is a process that I will have to go through to deal with this. J and I have both been talking about this wheelchair for a bit and I know that we both hoped that maybe, just maybe he wouldn’t need one. High hopes, but as parents it is one of the hardest things to accept. That your child will never walk.

Anyways, A and I went to the mall afterwards so I could try it out and get a few things done at the same time. So far, no complaints! The only complaint I do have is how many people STARE! It drives me up the friggin wall. Now most of the people that stare are children and really they don’t any better, but it is their parents job to teach them about how kids can be different. When kids aren’t told about things like this then they just don’t know what to think. Well anyways, that is a whole other post.

Daddy came home from work pretty early today and when I heard him come in I went into the kitchen. He looked at the chair and said “wow, his other one didn’t look anything like that.” I said “what, like a wheelchair?” Then his tears came. We hugged and cried together.

14 responses

  1. Justinich Family

    So sorry that you guys are sick, that just is no fun. As far as the wheelchair goes I can totally understand your feelings, even though my son walks I still use it all the time and I am frustrated because when we got it he was not walking and people stared and I just kept thinking that nothing has changed except what I am pushing him in so quit staring. Now that Evan is walking I thought for sure I would not use it as much but I use it all the time because he just gets tired and has a hard time listening or understanding that he has to stay with me when we are in the store or out in public. Go ahead and have your tears because this is something that certainly takes some getting used to.

    July 31, 2008 at 3:32 am

  2. Andrea/David

    Hi,let People stare like they want!!!! I know it´s very hard to have a child not being “normal” – but please DON`T stop believing in your child – Ashton and you are strong persons, 24h a day, alle year long! it´s allowed to cry for that new situation, it´s very normal and good! Think positive in every was – Ashton is a fighter, my son is a fighter! My little men is my Hero, my sunshine and the most interesting person I´ve ever met! We can learn so many things from them – to make intolerance into tolerance ……. and the new wheely is great, it´s a new milestone and he will have a billion more milestones in his life! His biggest: he survived! =))) HugsAndrea with Hubby Michael and little David

    July 31, 2008 at 11:46 am

  3. Vickie

    Reading about the past few weeks has just made me exhausted, so you must be ready to just about pass out. Anyway hope you guys are on the mend soon. We’re working hard to get healthy and stay that way….17 more days, where does the time go!

    July 31, 2008 at 6:25 pm

  4. Mel

    Getting use to the wheelchair is hard but then you realize how nice it is to have them sitting nicely… oh and he looks so happy sitting there. That’s all that matters.When people stare I am appalled that they don’t realize I can see them staring or they don’t care… I don’t get it!

    July 31, 2008 at 8:46 pm

  5. Melissa

    I know that you will be strong and work through all of the emotions you have around Ashton’s wheelchair. It’s a process, just like everything else….You are a fantastic mom, and you will get through this, like you’ve gotten through so much worse!! I have to say, though, that the looks FANTASTIC in that chair! His positioning looks terrific! What does Ashton think about his new chair? He sure looks like he likes it!

    July 31, 2008 at 9:13 pm

  6. Jacolyn

    I’ve avoided thinking about a wheelchair for Grace too. It sucks that we have to go there. Ashton looks great in it though and I hope you are feeling better.

    July 31, 2008 at 9:17 pm

  7. Trisha

    He always looks so happy! He’s an amazing little man!

    July 31, 2008 at 11:57 pm

  8. Sammie

    I have to say it again: There is nothing in the world like an ASHTON Smile!I LOVE his smile! It just lights up his whole face!

    August 1, 2008 at 5:30 am

  9. Jaclyn

    Ashton is so cute. I know the stares are hard but just remember that you have an awesome little boy. Also wondering how you get his coil to stay on. I see it looks like a bandaid or something but dosen’t that pull his hair. Preston’s coil falls off all the time since he still does alot of rolling around and would love to have something to help keep it on.

    August 1, 2008 at 3:27 pm

  10. Kellars Mommy

    Yay for the new wheels!!!

    August 1, 2008 at 3:49 pm

  11. Amanda Lawrence

    I’m sure that acclimating to having Ashton in a wheelchair is tough, especially when rude people stare, but his smile sure says it all. Your son radiates joy! What a beautiful child. I’m excited that he will be able to move around the world more easily now.Amanda

    August 1, 2008 at 4:02 pm

  12. The Hanna Family

    He is beautiful Shannon, thank you for sharing. I am privileged to know you through our Yahoo! group. I wish you all the best and hope to keep updated on your little man.Michelle Hanna, mom to Noah and Jonah

    August 1, 2008 at 7:48 pm

  13. BusyLizzyMom

    He is looking so grown up. I think the yellow is a cool color. Can’t wait to see him in his little tux at the wedding.

    August 7, 2008 at 2:23 am

  14. The Hull Munchkins

    Cool chair Ashton!! You look like such a big boy sitting in it.What kind is it? We will be looking at new chairs soon… right now Abby uses a loaner Kid’s Kart. I like it a lot and will miss it.But people stare at us too… and sometimes they make ugly faces like they are disgusted when they look at us. It makes me angry and very sad at the same moment!Hope you both feel better soon!-Patty

    August 19, 2008 at 9:24 pm

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