My First Upbeat Post In A While!

Well first I want to start this post off by saying that A has been wonderful since Saturday evening!!!!! He went for a nap on Saturday and when he woke up it was like he was back to himself!!! I didn’t even realize until about 10pm that he was not whining, not crying, not fussing! I can’t really say WHY things happened like this but I am sure not complaining.

I think it may have to do with me lowering his calories and doing the 10-8am feed and slow feeds in the day. He was always on 30cal/oz and I put him up to 37cal/oz when we came home. However I did talk to a few other moms that said their kids took a while to get up that high so I went down to 33cal/oz. The only thing that stinks is that he is on feeds throughout the entire night but I guess we have to do what works for him best!

Since Saturday night he has also not required oxygen at all and sits above 93. Of course he still has his ton of desats but at least he isn’t requiring the oxygen to stay above 90. I can’t explain this either but it is great. I had put him to bed Saturday night with the nasal prongs on, hooked him up to the monitor (no oxygen on yet) and he was at 97. I decided to leave him off the oxygen for a bit and for almost an hour he didn’t drop below 88 so I left him off it. And it has been that way since.

I do think there are going to be times that he requires oxygen but I am just so happy that it isn’t something that he needs every single night.

Physio and OT came on Monday and he did great. I really wasn’t thinking that it would work out anymore because of how he has been but it was nice to see him doing things that I haven’t seen him do in a while. He has been put on the waiting list for the seating clinic so that we can work with them to get him into a wheelchair probably within the next year.

It is so nice to see my little man back to the way I remember him. It has been a while. He isn’t without the gagging, odd vomit or blue spell but he is HAPPY and that is what matters to me the most!!!

Now for some long overdue pics of my little man!!

Cool dude!

Sleeping in his chair…doesn’t happen too often since he always needs his soother!!

I absolute love this picture!!! We went to Uncle S and Aunty As for a BBQ on the weekend and he just LOVES being outside.

Loving the swing at Uncle S and Aunty A’s!


8 responses

  1. Melissa

    I’m doing a little happy dance for you right now! It is so wonderful to hear that Ashton is happy and enjoying life! The pics of him are precious and the good news makes me smile! Yeah for you guys!

    April 23, 2008 at 2:52 pm

  2. Vickie

    Great stuff!

    April 23, 2008 at 3:24 pm

  3. ladydianne

    Great stuff, you rock on! Hello Shannon, Jeffrey and #1 Ashton!!I love the pics of Ashton, they are awesome. Sure am glad to hear that Ashton is doing better. You guys need to come and visit real soon, like today.We have to go and do physio now, it is getting late.Love you guys, Sean

    April 23, 2008 at 6:34 pm

  4. Jamie and Jill

    I am so glad to hear all of the good news. You have been such an inspiration to other moms so please know just how lucky Ashton is to have you.I pray for your little man ALL the time!

    April 23, 2008 at 8:12 pm

  5. abby

    I’m so relieved. I’ve been checking and checking and this is the best post…And the pic of Ashton outside is priceless.

    April 24, 2008 at 1:20 am

  6. Lisa

    Woo Hoo!!I am so happy that Ashton has returned to his happy smiley self. He is beautiful and I LOVE his smiles!!Now that your feeing better – we can’t wait to see you.

    April 24, 2008 at 2:06 am

  7. BusyLizzyMom

    I can’t believe how old he looks with his hair longer. Glad to hear is doing better.

    April 26, 2008 at 1:47 am

  8. Nathali

    I can’t say it enough, but Ashton is absolutely AMAZING!!!! I love his happy pictures!! How is he getting along with the new puppy?

    April 27, 2008 at 11:44 pm

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