Home After 88 Days!
Well our journey at the hospital has ended. We brought A home yesterday after 88 long days. I can hardly believe it. I told the docs on Thursday that I wanted to take him home and that I had enough. I just couldn’t do it anymore. Every time I tried to talk to someone I would cry. It didn’t even matter if it was about him.
He had a pretty big episode Saturday around 4pm and then again yesterday afternoon around 1pm. However I knew staying isn’t going to help and I need to try it here at home. If he needs to go back I will know. I have to say too that the discharge papers have many things in there that are not correct and things that I didn’t even know yet. Interesting. Lucky I didn’t have to sign it because there is no way that I would have.
Anyways, long story short we are home with no answers. Home hopefully for a while. A was very happy to be home last night and ended up falling asleep in his chair around 6pm. When he woke up at 7:30pm he had a pretty long episode that was pretty scary to me. I am sure hoping this isn’t going to continue. We had our nurse last night so I was able to get a good sleep.
Thanks everyone for all your thoughts throughout this ordeal. It means a lot to know so many people care.
In the car for the first time in a while on our day pass…
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