No Cardiac Issues!

Sunday night we headed over to watch the Grey Cup with grandma, grandpa and their friends after getting our family Christmas pictures done. WOW that was not fun and I can’t believe how grumpy this kid is when it comes to picture time! Here at home he smiles as soon as he sees the camera but yet whenever we go for photos he is the most miserable child ever! I did everything but hang upside down to get a smile out of him!

Hanging out watching football…


Notice how he is holding BOTH of his socks! Way to go A!

Well we had quite the day yesterday at Mac for A’s echo! Grandma came and picked us up at 6:30am and we were there for 7:30am. A was in a super mood which was surprising as I had to wake him up and he didn’t sleep much on Sunday night.

Mommy in her scrubs and one happy boy!




At 9am we were taken over to the OR with A. I then had a chance to talk to the nurses and the anesthetist about A being put under with a general anesthetic. I am always very concerned because he doesn’t do well afterwards coming out of it. The anesthetist decided that they would try and do the echo without the general. At 9:45am A was taken into the OR. At 10:30am the nurse came to get me to go into the recovery room to see A. I was immediately basically thrown onto a stretcher as another nurse took my coat and purse from me. A was then handed to me and it was obvious that he wasn’t doing too well. I thought that they had ended up doing the general and this was the problem.

The anesthetist then came over to talk to me about how things were done and her concern on A dropping his sats to the 50s and 60s continuously on six litres of oxygen. I said to her that this is ALWAYS how he behaves after a general anesthetic. This is when she told me that he didn’t have one. He didn’t even really have sedation. The only thing he had was a “whiff” of nitrous oxide which she said was enough to last maybe ten minutes. What?! Then what is going on?! No one knew. They were suctioning and did a breathing treatment. He went to sleep on me and was doing “okay” at this point with the odd dip into the 70s. However as soon as he would start to wake up and move he would start again with the drops.

The cardiologist came in to speak to me and that is when I got the great news that A does not have any cardiac issues! A year ago his echo showed that one of the vessels that grows in the muscle of the heart was actually turned into his left chamber and they were concerned about that. It corrected itself though so we are free of cardiology!

Finally at about 1pm A was transferred out of the PACU and into the day surgery recovery. However his dips still continued and I was getting VERY frustrated. I just don’t understand how this goes on and on but yet NOTHING is done?! Grandma was finally able to join us and A went right to sleep when we laid him on his belly and gave him his lifesaving soother. The nurse had his oxygen turned down to just under a litre and he was satting 80-84 consistent. Finally about 4:30pm he was up to 88-90 consistently. I however was not pleased with all this going on and just wanted to get to the bottom of it. The anesthetist kept coming in and was worried about what was happening. She then mentioned that he might be admitted. I of course fought that because I don’t need him catching something else up in the ped ward. I then asked what was going to be done if he was admitted. Nothing….just observation was her answer. Well I can observe him at home and we have oxygen here.

When I was talking to her later on I asked what she thought was happening. She immediately said airway issues. Thank you! That is what I have been saying for so long now I don’t even remember!!!!!! But then of course it comes down to the fact that no matter where we are (hospital) and he does this NOTHING is done. No tests are ordered and we are sent on our way. I just don’t get it.

At about 5pm A woke up and I was trying to keep him happy. The anesthetist wanted to see him awake and what he was up to before sending us home. Well wouldn’t you know it he was not happy and constantly dropping to the 60s,70s and so on. The only way to keep him happy was giving him water! Of course I automatically think he has a fever because he only drinks with a fever but nope. Probably the nitrous and all the oxygen. Grandma couldn’t give it to him fast enough! LOL


FINALLY at 6pm she said we could go as long as he was put back on the oxygen here at home and that if I was at all concerned that I would take him in. Sure thing! (I had to laugh in my head because EVEN when I DO take him anywhere there are no answers. *^$& even calling 911 didn’t get us anywhere. How sad is this?!??!

We were home about 7:30pm and A went right to sleep. He did well last night and is a happy guy today. Still on a half litre of oxygen but home….

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5 responses

  1. Anonymous

    Sorry to hear things didn’t go so smoothly. I always worry when there is any type of sedation. It really seems to set some kids back, and it takes so long to recover. Hopefully he’s back to himself quickly.-Vickie

    November 28, 2007 at 1:20 am

  2. 23wktwins'mommy

    Shannon, this is just unreal. If they think it’s airway why do you have to wait SO long to see an ENT? This should be handled immediately! I’m glad you’ve discovered it is not cardiac, now the Docs need to step up and get those other appointments to find out what is going on with Ashton dropping his sats so low.Wishing you good luck in finding answers for Ashton!

    November 28, 2007 at 1:46 am

  3. The Hull Munchkins

    I can’t believe how frustrating for you! How could they not look into a child dropping his sats so frequently. It’s not like he’s still a NICU baby and they expect to see it. Gosh! Somebody figure this out. I’m sorry you have to struggle so much to get answers. So glad no cardiac issues though, that’s wonderful! Ashton looks cute in his little hospital gown.-Patty

    November 28, 2007 at 3:11 am

  4. Nathali

    OMG!!! Does it ever end?! You are such a great advocate for you son, but what does the medical field expect from you?! Are you supposed to start ordering the tests for Ashton yourself?! Why does nobody in the medical field take initiative to get to the bottom of this?! This is so frustrating!!! Hang in there!!!

    November 28, 2007 at 6:39 am

  5. Sarah Furlough

    Shannon, I just can’t believe that you still have no concrete answers! Thank goodness it’s not cardiac, but you NEED answers!I wish I could help in some way. I am thinking of you, and I know you are doing everything possible for Ashton.

    November 29, 2007 at 3:44 am

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