Growth & Development 2 Year Check

Well we are still a pretty sick household here! A is on day 11 and mommy is on day 6. I never understand how we get sick because I am constantly washing my hands and using sanitizer. But it just goes to show that you can’t kill every germ that comes your way!

I had to post these next two pictures because they are just way too cute! Now anyone that knows us, knows that the dogs are NOT allowed on the furniture. They are very good about not getting up but lately Cujo has been doing some sneaking. I have come home a couple of times to find hair on A’s blanket. Well the other day I came in and he was sound asleep so I had to grab the camera…

Yesterday A had his two year check up with growth and development. The doctor that he sees is absolutely awesome and I always am happy to go and happy when I leave. He was very happy with A and the progress that he has had since he last saw him six months ago. Of course, six months ago he didn’t have his cochlear implant and that has brought him so much further.

The first thing that he always says is “so….brag about A.” I have gotten good but I admit the first time that I met him and he asked me I started crying.

I admire this doctor because he is honest and to the point. I was asking him his thoughts on ABR therapy and hyperbarics and he said “if it sounds too good to be true, than it probably is.” I am always looking for ways to improve A’s life and have done tons and tons of research into many different things that I would like to maybe try. However it is hard when some of these things are huge amounts of money and there is no guarantee that it will benefit him.

The power wheelchair was brought up again and it looks like he really will be going into one next year. I will be calling kidsability to get A into the seating clinic for this as well as trying to find him a suitable seating device for in the home. I am having a heck of a time with him now that he is older and wants to go, go, go. The only place here that he sits properly is his swing, however he is getting to the point where he is almost too big for it. With hip and spine issues with kids that have CP I have to worry about his posture constantly.

I told him that I really worry about the future and what A will be like. I always wonder if he is going to be the kid with CP but totally there and right on target with his friends or if he is going to be the kid with CP that is 15 but at a much lower age level. I know that he can’t tell me but I admit that is one of the things that I think about all of the time. That is the one thing that really sucks about cerebral palsy. The waiting game….

All in all it was a great appointment. I had a call the other day from his secretary to remind me about the appointment and to add more time because we would have to do the Bailey’s test. I was not impressed. I think that these tests to see where your child is developmentally are just crazy to do for a child that has cerebral palsy and is deaf. At the end of the appointment with him he said he would see us next year. I asked about the Bailey test and he said “nope, you are not doing it.” Right on!

We headed up to the NICU to see if one of A’s nurses was on, but of course no luck again. We haven’t seen her in a year! If you are reading this Marg, we try and see you all the time and miss you! We did get to see Joyce although A was upset with her for leaving him. hahaha

We really miss having Joyce around. She is absolutely amazing and one of the most caring, loving nurses that I know.

And now for my little man. As you can see the sickness doesn’t stop this kid from smiling!

5 responses

  1. 1stson24weeks

    Hi Shannon,I am so glad you posted on my blog because I have never even heard of an ALTE until it happened to me. I have been reading your blog for a while now and what a precious little boy you have. Its very clear that you are a very strong person and wonderful mother! I don’t want to hog you blog with all my stuff but I would love to talk sometime, it seems our sons have somethings in common and it would be nice to talk to someone who has been though this. (and still going through it) This preemie life is like no other! Stephanie has been a HUGE supoport for me, and I think you’d be able to help me too. I sometimes feel pretty lost in all this! Erika

    September 28, 2007 at 2:15 am

  2. Miracles

    What a happy boy, even when he’s under the weather. It’s good to hear your appointment at Mac went well. We were suppose to go today for G&D and the new test,which would have ended up being a three hour appointment. They had to cancel on us which made me so very happy. It’s something I’m not looking forward to. Way too long if you ask me.Those pics of Cujo are adorable!!

    September 28, 2007 at 2:43 am

  3. Anonymous

    I don’t know, if you ask me Ashton seems to be a bright little boy, he really seems to know what is going on. It’s nice that you didn’t have to take that test, since it would be hard for him to communicate at this point in time. Great pics, I hope you guys are feeling well soon!-Vickie

    September 28, 2007 at 5:14 am

  4. baby james

    How cute the dog he was probably missing Ashton. Who you can not tell is not feeling well, he is such a joy. Thank you for you comments on my blog. I hope you continue to give me you thoughts. Tracy

    September 28, 2007 at 6:46 am

  5. Jess

    I just wanted to let you know your son is absolutley gorgeous. And you are so lucky to have this little boy in your life. I read your website from the beginning, I can feel the love that you and your family have for him. I have the up most respect for you and what you have to go through each day for Ashton. But it is all worth it.

    October 1, 2007 at 6:35 pm

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