The Superstand Is Here!

My little man is now 22 months old! (As of yesterday) I cannot even believe that in just two months he is going to be turning 2 years old!

Yesterday A’s dietitian was here to weigh him. He is now 22lbs13oz! He has been gaining 15grams per day average which is great considering that he has been at 45ml/hour for a long time now.

So today Leanne came from the company that deals with all of the equipment for special needs. She brought over the superstand for us to try using with A for a bit! It was so exciting. I really am not sure which stander I like better though. The buffalo stand that we tried a while ago was more compact than this one and didn’t take up as much room. However this one I believe gives A more support. I think this really helps with him feeling more secure. With the buffalo stander you could tell that he wasn’t really liking it after short periods of time. This superstand really helps hold him secure. I hope that it will help him feel more relaxed and able to use his hands/arms more than usual. So we will see how it goes and then we will decide which one we want to order for him.

So the reflux issue is still a problem. He has been doing a little better with the amount of vomiting but not even close to what I would consider okay. I have also noticed the past week or so how much he drops his sats. Very frustrating when we thought we were past that. It is very obvious that it is the reflux that is causing this issue. I will be taking him to see his GI next week and I am hoping that she will be able to help him out in SOME way.

Grandma was here today and she had A holding some different things…

First is his little shaker…



Grandma’s granola bar…

Grandma’s banana…look at that curious face!

Open wide!! (The funny thing was he was licking the banana!) He didn’t gag or throw up! I was so excited that I took a bit and mashed it up and then tried to spoon feed it to him. Right when it went in his mouth he threw up. He sure did like just licking it though and getting the taste that way. But hey, it was a step for him!


I just LOVE this shirt on him! I bought it at Christmas for him and thought it would be way too big for him but it fit pretty good!


A in the superstand…what is that face all about?! (Might I add that those are just the most gorgeous blue eyes EVER!)

My smiling little man…this however is the only one in the stander with him smiling. I tried and I tried but nope he wouldn’t do it. Strange since he is normally the smiling king!



The collar around his neck is not part of the standing frame. We just received that today though for him to help with support. In the stander he cannot be straight up or even close really or else he pulls his head forward and it will fall down and he can’t lift it up. So this collar doesn’t let him do this. I found that it worked pretty good in the stander because that way he could be standing right straight and not have to worry about having his head flopping down.


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4 responses

  1. Lisa

    He looks SOOO cute in his stander!!

    April 12, 2007 at 4:19 am

  2. Anonymous

    He looks good in it. Thanks for posting the pics!-Vickie

    April 12, 2007 at 5:04 am

  3. Miracles

    Glad to hear he’s doing better. Too bad about the banana, hopefully in time things will change. Good that he’s interested though.He sure does have the most gorgeous blue eyes. He’s going to break a lot of hearts with them one day!

    April 12, 2007 at 2:41 pm

  4. Tiffany

    Hello – I found your blog today online. I have a 10 month old son. He was full term but not breathing and has brain damage. My therapist just told me about equipment for when he is bigger to help him stand – i assume this is what she was talking about. How big did your son need to be before he was able to use it? I enjoyed watching the video of his first month of life – he was so tiny – God is so good!! ~Tiffany~

    April 12, 2007 at 4:13 pm

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