Growth & Development
Well today was our trip to Mac to meet with A’s growth and development doctor, Rosenbaum. The last time that we saw him was in October. It wasn’t as in depth as the last two seemed but that is obviously because they know his history now and are just following him as he gets older and progresses.
A was being his normal happy self. Smiling and cooing like crazy at this doctor. He was very happy with how social A is and how he interacts in general. When I mentioned his eyes (because he didn’t have glasses the last time) he was kind of shocked at him being a -7 in each eye. He said that he is a -9 and he is basically blind without his glasses. I think it is always hard for me to imagine what it is like for A because I don’t wear glasses and can see fine. I do know that within the past two weeks or so when A sees me taking his glasses out of the case in the morning he smiles. Definitely a sort of sign from him that he likes to have them on.
When he asked me to brag about what A does that is always hard for me. I have to stop myself from getting emotional. I love A to death but it is always hard for me to think of how he has changed. With me being around him all of the time it is harder for me to notice the different things that he is doing. When I look back over the past year it is like not much has changed. But yet when you look at it in a big picture there are things. Just not as noticeable as a child that progresses at the “normal” rate.
I told him about A rolling from his tummy to his back, which he was happy to hear. But at the same time that is the easiest way for a baby to roll. I however am ecstatic that he is doing this!
The most difficult and exciting topic was brought up today. He said to me “have you thought much about A getting an electric wheelchair?” WOW I have to admit that I was a little thrown off. (Another moment of holding back the tears for sure) I think what was so much more difficult was because this was the doctor who “refused” to say that A had cerebral palsy. Wanted to just keep an eye on him and see how he progresses.
So in my head I am thinking how A is not even two yet and that would be years and years down the road. Nope…he said he would like to see A getting into one at the age of three, maybe four. For real?! Yes he was for real. I have to admit that I have NEVER even really thought about the whole wheelchair issue. I have known deep down that A would most likely not walk, but thinking of wheelchairs is hard for me.
As for an electric wheelchair, well that would have been the LAST type I would have thought with A. He said they have done studies with kids and it shows how much more they open up with being able to manipulate what they are doing on their own. How much it opens up their worlds. He said it is something that even *I* would notice with A. His behaviour and attitude. But three, four years old? I didn’t know that was possible. He believes that A is brighter than we think he is and that he would be one of the “ones” that could use an electric wheelchair. Can you imagine my little man in a motorized wheelchair at the age of three/four?! His world will be so much bigger than it is now!
So I left this meeting with Dr.Rosenbaum with my dad and A feeling happy and sad. Happy because A is the most amazing kid in the world and sad because once again reality hit me in the head. Don’t get me wrong, I am not sad that A WILL need a wheelchair, it is just always hard to hear docs tell you things that you already know. Makes it “real”.
Anyhow I will end this post with a few pics of my little man last night. I had gone for coffee with my brother because J wanted to finish watching the Leaf game. I told him to put A to bed and I wouldn’t be long. I told my brother that I could bet him any amount of money…A would NOT be in bed. I was right! He was sleeping on the floor on his pillow. Too cute!