We Have The Buffalo Stander!
Well it was another fun day around this house. A didn’t have too bad of a night for how crappy he is feeling but he sure did not wake up happy. I took his temperature this morning and his fever was back. Not too bad, but enough that it was noticeable to me. We cuddled on the couch for a bit because that was all that he wanted to do. I tried to call the ped just before lunch but I couldn’t get through so I thought I would wait and of course it was closed for the afternoon. I will be taking him for sure tomorrow.
Andrea was here for 12pm. She is the new social service worker that will be working with A. He had just gone to sleep at about 11:30am so we just sat and talked. At 12:30pm his physiotherapist came over with Leanne from motion specialties. They brought the one stander for us to try with A! It is the buffalo stander which I wasn’t too keen on but willing to try it out and see how I like it. I guess it will be better for us to compare two standers and then decide anyways which one that we want.
I was so excited to get him in it, but he wasn’t thrilled at all. It was so obvious that he did not feel good to everyone that was here. Anyhow we did get him in it and they got it all set up for me so I just have to put him in it and do all the straps up. The pieces that are beside his head are actually laterals that are supposed to go on each side of him, but his head would sway back and forth too much. If we were to get this stander then there is a custom headrest that would be made for him to go on it.
Leanne and Monique didn’t end up leaving until almost 2pm and A was ready to go to sleep again. I did some laundry and cleaning while Andrea was here. She left at 4pm, wow how times flies!
Oh and on an exciting note before I forget, A took a whole entire bottle of sugar water!!!! That is 90mls!!! I wish he would do this ALL of the time and then we could be on the road to getting rid of the feeding tube! But for some strange reason he ONLY does this when he is not feeling well. I think it is because his mouth gets so dry and he is thirsty. Still this is very exciting for me! It was so nice to sit and have him bottling in my arms….I really miss that.
Daddy actually got home early for a change. It was about 4:30pm. I put A in his stander again and with daddy there he was okay for about three minutes and then wanted out. I even tried bubbles and the fan but to no avail.
We decided to go out to grandma and grandpa’s to BBQ since the weather was so nice. We picked up Aunt Shorty and she came as well. Uncle S was also there so we made burgers for all of us.
A passed out at about 8:30pm and when we went to leave he barely woke up while I dressed him and put him in his car seat. Such a cutie!