WE’RE BACK!!!

Well I have received a few emails wondering if everything is okay and I just wanted to say yes! I was unable to use my Internet for a couple of days but I am all hooked up now! I had just over 100 emails and of course have missed writing in my blog daily.

So this week has been pretty boring anyhow. I still am not feeling the greatest. I went to the walk in clinic on Monday because of my ear and sure enough it was infected. I was started on antibiotics but have to say that I still cannot hear out of my ear and it still is irritating!

A is doing good. He has not caught my cold or anything! Thank God for hand sanitizer! He had his therapy with Monica (OT) on Tuesday and she is very happy with him. Being relatively new to A it is nice to hear considering she is just getting to know him. I was supposed to go to a parent group for children with special needs with my friend Vickie that night as well but we both weren’t feeling good enough to go.

Yesterday A had his teacher from the deaf school (Valerie) and I was irritated to no end! I don’t really know what it is with her, but I just can feel my blood boiling when she is here. I think I really need to look into putting it on hold with her until A is closer to getting into school. He also had Deb (AVT) come over in the afternoon to work with him. She was very pleased to see how much more interactive A is with his toys. He gets very excited lately with toys and really wants to play like a normal baby!

I also talked to her about him hearing certain things now. If you clap loud enough he will look and certain sounds I do he will look as well. She said it is learned behaviour and that he recognizes those sounds now. This will help when he gets his implant because he will at least have some sense of what sound is.

We also did a testing scale for A because of what I was told at his appointment last week with the specialists in London. The doctor was pretty much dead on. A has all of the requirements in the 1-4 month range and a few in the 4-6 month range. Definitely opened my eyes to where he “should” be and where he is. We have to take into account his hearing/seeing obviously so hopefully once he gets his implant we will be able to see all of the 4-6 month boxes checked and higher.

So something new this week with A is his vomiting. He never used to vomit unless he was sick and it seems to be a daily occurrence now. It isn’t formula, but instead is thick/white mucus or bile. It is a bit concerning to me because of how often he is doing it and how much there is when he does. During the night I also hear him dry heaving a lot and gagging during the day for no apparent reason. In a book that I am reading I read that vomiting excess mucus can be the body’s way of getting rid of something harmful. It then goes on to say that the body is made to receive a diversified diet and that there is something called the “rotation diet”. It requires to use four different formulas and change them everyday from 1-4 and then continue. Interesting to read about since I have never heard such a thing. But if you think about it, it really makes sense. A has been on this enfamil now for 14 months. The first six months he was on breast milk. That is a long time to be on one formula that is concentrated to 30cals as well. So when I see his dietitian this week I will talk to her and see what she thinks.

Well tonight we went to the Storm game because they were playing the rival team London. Those are always great games to go to. Storm lost in overtime.

Here are some pictures from the other day of A in his tumbleform chair…




A getting ready for the Storm game wearing his signed jersey!

Sitting with grandma at the game…

On the way home all smiles…


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4 responses

  1. Miracles

    So glad your back! One happy baby as usual. Looks like he’s trying to get his up more, that’s great!You should inquire about Nutrimegen formula. Avery had the same problem with vomiting and mucus. Her Ped put her on that formula and she did much better. It smells awful and is brutally expensive ($30.00) a container but seems to work. Something to think about.Hope your ear feels better soon.

    February 9, 2007 at 2:32 pm

  2. Anonymous

    Yeah! Nice to see a new post. Glad to hear all is well.

    February 10, 2007 at 1:20 am

  3. Julie

    Interesting stuff you found on the vomiting! Taylor has been vomiting thick mucous and bile for a while now. That is actually how he ended up with the G/J tube. For a couple months just having the G/J helped, but around the end of Nov. he started vomiting again. He does it every morning, and sometimes up to six times a day. At this rate, I fear we might never get off the J tube. Please share if you find anything else out. I find Taylor’s wrenching just heart breaking. How can we expect anyone to eat when they wrench and puke like that?

    February 11, 2007 at 3:03 am

  4. Mel

    I enjoyed visiting your blog.What a happy little boy you have there!

    February 11, 2007 at 8:27 pm

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